Survey Closes 31 December 2026

Are You a Tasmanian Impacted by Cancer?

Have you been diagnosed with cancer, or do you care for someone who has?

Researchers from the University of Tasmania and Menzies Institute for Medical Research are inviting Tasmanians affected by cancer to help develop a genetic information tool designed to support people in making informed decisions about genetic testing. [Menzies Fl…esting (1) | PDF]

Why Is This Research Important?

Genetic testing can play an important role in understanding some cancers and may help inform treatment options, future health decisions, and information for family members.

The research team is working to ensure that information about genetic testing is clear, practical and useful for Tasmanians. To do this, they are seeking feedback from people with lived experience of cancer and those who support someone affected by cancer. [Menzies Fl…esting (1) | PDF]

How Can You Help?

Participants will be invited to attend a small group session, either online or in person, where they will have the opportunity to see the tool in action and provide feedback. The insights shared by participants will help refine the tool and ensure it better meets the needs of Tasmanians. [Menzies Fl…esting (1) | PDF]

Whether you have personal experience with cancer or support a family member or friend, your perspective can help shape a resource that may benefit others facing similar decisions in the future.

Interested in Participating?

To learn more about the study and complete the consent form, scan the QR code below.

If you are unable to use the QR code, you can access the same information here by clicking this link:

Participant Information Sheet and Consent

We have included a direct web link to ensure the information is accessible to everyone, including people who are unable to scan QR codes.

QR CODE IMAGE HERE

Questions?

If you would like more information about the study or participation, please contact the research team:

Email: raredisease@utas.edu.au
Phone: (03) 6226 8666

Ethics Approval

This study has been approved by the University of Tasmania Human Research Ethics Committee (H40476).

Cancer Genetic Testing Cancer Research Health Research Research Participation Consumer Participation Lived Experience Tasmania University of Tasmania Menzies Institute for Medical Research